Blogging illness: Narratives of restitution and quest in breast cancer blogs
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Published
21-07-2015
Mariona Visa Barbosa
Gerard Coll-Planas
Abstract
Distinguishing between restitution, chaos and quest narratives (Frank, 1995), this paper analyses which narratives prevail in 7 blogs written by women with breast cancer. The most present narrative is the restitution, in which patients turn to medicine with the aim of recovering their previous status. There are also examples of the quest narrative, when illness is seen as a challenge and visibility of the wounded body is claimed. The absence of chaos narrative confirms the cultural difficulty to acknowledge the negative aspects of illness.
How to Cite
Visa Barbosa, M., & Coll-Planas, G. (2015). Blogging illness: Narratives of restitution and quest in breast cancer blogs. ZER - Journal of Communication Studies, 20(38). https://doi.org/10.1387/zer.14796
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References
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NOSEK, M.; Kennedy, H.; GUDMUNDSDOTTIR, M. (2012). Chaos, restitution and quest: one woman's journey through menopause. En: Sociology of health y illness, nº 34(7), pp. 994-1009.
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SEALE, C. (2005). New directions for critical internet health studies: representing cancer experience on the web. En: Sociology of health y illness, vol. 27(4): pp. 515-540.
SHAPIRO, J. (2011). Illness narratives: reliability, authenticity and the empathic witness. En: Medical humanities, vol. 37(2), pp. 68-72.
SMITH, B.; SPARKES, A. C. (2008). Changing bodies, changing narratives and the consequences of tellability: A case study of becoming disabled through sport. En: Sociology of health y illness, vol. 30(2), pp. 217-236.
SUMALLA, E. C.; OCHOA, C.; BLANCO, I. (2013). «Pero… ¿estoy curada?». Narración de restitución y discurso biomédico en cáncer de mama. En: MARTÍNEZ-HERNÁNDEZ, Á.; MASSANA, I.; Digiacomo S. M. (eds.). Evidencias y narrativas en la atención sanitaria Una perspectiva antropológica. Tarragona / Portoalegre: Publicacions de la URV y Rede Unida.
THOMAS-MacLEAN, R. (2004). Understanding breast cancer stories via Frank's narrative types. En: Social science y medicine, vol. 58(9), pp. 1647-1657.
VISA, M. (2013). L'àlbum fotogràfic familiar. Un relat socialitzat de la pròpia vida. Lleida: Publicacions UDL y IEI.
WENTZER, H. S.; BYGHOLM, A. (2013). Narratives of empowerment and compliance: Studies of communication in online patient support groups. En: International journal of medical informatics, 82(12), pp. e386-e394.
WHITEHEAD, L. (2006). Quest, chaos and restitution: Living with chronic fatigue syndrome/myalgic encephalomyelitis. En:Social,Science and Medicine, vol. 62. Issue 9, pp. 2236-2245.
ZIEBLAND, S.; WYKE, S. (2012). Health and illness in a connected world: how might sharing experiences on the internet affect people's health? En: Milbank Quarterly, vol. 90(2), pp. 219-249.
BAUMAN, Z. (1992). Mortality, Inmortality and other Life Strategies. Standford: Stanford University Press.
BURY, M. (2001). Illness narratives: fact or fiction? En: Sociology of Health and Illness, nº 23(3), pp. 263-28.
CABRUJA, T.; IÑIGUEZ, L.; VÁZQUEZ, F. (2000). Cómo construimos el mundo: relativismo, espacios de relación y narratividad. En: Anàlisi, nº 25, pp. 62-94.
COLL-PLANAS, G.; ALFAMA, E.; CRUELLS, M. (2013). Se_nos gener@ mujeres. La construcción discursiva del pecho femenino en el ámbito médico. En: Atenea Digital, nº 13(3), pp.121-135.
COLL-PLANAS, G. (2014). «Me quedaré con lo positivo»: Análisis de blogs de mujeres con cáncer de mama. En: Aloma, nº 32(1): pp. 33-44.
COUSER, G. T. (1999). Autopathography: Women, Illness, and Lifewriting. En: WATSON, Martine (ed.). Women and Autobiography. Scholarly resources.
FRANK, A. (1995). The Wounded Storyteller. Body, Illness, and Ethics. Chicago: The University of Chicago Press.
GOFFMAN, E. (2006). La presentación de la persona en la vida cotidiana. Amorrortu Editores: Buenos Aires.
GREIMAS, J. (1987). Semántica estructural. Madrid: Gredos.
GUALTIERI, L.; AKHTAR, F. (2013). Cancer patient blogs: How patients, clinicians, and researchers learn from rich narratives of illness. En: LUZAR-STIFFLER, V.; JAREC, I. (eds.). ITI, IEEE, pp. 3-8.
KEIM-MALPASS, J. et al. (2013). Blogging through cancer: Young women's persistent problems shared online. En: Cancer nursing, vol. 36(2), pp. 163-172.
LORDE, A. (1980). The Cancer Journals. San Francisco: Aunt Lute Books.
McCOSKER, A. (2008). Blogging illness: recovering in public. En: M/C Journal, vol. 11(6).
NETTLETON, S. et al. (2004). Health e-types? An analysis of the everyday use of the internet for health, Information, Communication and Society, nº 7, 4.
MORRICK, N. R. (2005). The dark side of tellability. En: Narrative Inquiry, vol. 15(2), pp. 323-344.
NOSEK, M.; Kennedy, H.; GUDMUNDSDOTTIR, M. (2012). Chaos, restitution and quest: one woman's journey through menopause. En: Sociology of health y illness, nº 34(7), pp. 994-1009.
PITTS, V. (2004). Illness and Internet empowerment: writing and reading breast cancer in cyberspace. En: Health, vol. 8(1), pp. 33-59.
QUINN, E. M. et al. (2013). Who's talking about breast cancer? Analysis of daily breast cancer posts on the internet. En: The Breast, vol. 22(1), pp. 24-27.
REIG, D. (2012). Socionomía. ¿Vas a perderte la revolución social? Deusto ediciones.
RESSLER, P. et al. (2012). Communicating the Experience of Chronic Pain and Illness Through Blogging. En: J Med Internet Res, vol. 14(5).
RUIZ COLLANTES, X. (2000). Retórica creativa. Barcelona: UAB.
SANDAUNET, A. (2008). A Space for Suffering? Communicating Breast Cancer in an Online Self-Help Context. En: Qual Health Res, vol. 18, nº 12, pp. 1631-1641.
SANZ, F. (2007). La fotobiografía. Barcelona: Kairós.
SEALE, C. (2002). Cancer heroics: a study of news reports with particular reference to gender. En: Sociology, vol. 36(1), pp. 107-26.
SEALE, C. (2005). New directions for critical internet health studies: representing cancer experience on the web. En: Sociology of health y illness, vol. 27(4): pp. 515-540.
SHAPIRO, J. (2011). Illness narratives: reliability, authenticity and the empathic witness. En: Medical humanities, vol. 37(2), pp. 68-72.
SMITH, B.; SPARKES, A. C. (2008). Changing bodies, changing narratives and the consequences of tellability: A case study of becoming disabled through sport. En: Sociology of health y illness, vol. 30(2), pp. 217-236.
SUMALLA, E. C.; OCHOA, C.; BLANCO, I. (2013). «Pero… ¿estoy curada?». Narración de restitución y discurso biomédico en cáncer de mama. En: MARTÍNEZ-HERNÁNDEZ, Á.; MASSANA, I.; Digiacomo S. M. (eds.). Evidencias y narrativas en la atención sanitaria Una perspectiva antropológica. Tarragona / Portoalegre: Publicacions de la URV y Rede Unida.
THOMAS-MacLEAN, R. (2004). Understanding breast cancer stories via Frank's narrative types. En: Social science y medicine, vol. 58(9), pp. 1647-1657.
VISA, M. (2013). L'àlbum fotogràfic familiar. Un relat socialitzat de la pròpia vida. Lleida: Publicacions UDL y IEI.
WENTZER, H. S.; BYGHOLM, A. (2013). Narratives of empowerment and compliance: Studies of communication in online patient support groups. En: International journal of medical informatics, 82(12), pp. e386-e394.
WHITEHEAD, L. (2006). Quest, chaos and restitution: Living with chronic fatigue syndrome/myalgic encephalomyelitis. En:Social,Science and Medicine, vol. 62. Issue 9, pp. 2236-2245.
ZIEBLAND, S.; WYKE, S. (2012). Health and illness in a connected world: how might sharing experiences on the internet affect people's health? En: Milbank Quarterly, vol. 90(2), pp. 219-249.
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