Disability from a Rights Perspective: Rights and Quality of Life of Individuals with Intellectual Disabilities in Gipuzkoa

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Published 2024-07-08
Irati Amunarriz Iruretagoiena Aintzane Rodriguez Poza Peio Manterola Pavo

Abstract

the Rights of Persons with Disabilities. Despite the absence of evaluations aimed at systematically assessing whether the Convention, beyond legislative developments, has translated into tangible realities for people with disabilities in Spain, various exploratory studies and reports by different local associations suggest that progress has been more evident in its proclamation than in its implementation. Considering the demand for both models and instruments capable of operationalizing the articles included in the Convention to evaluate the impact of implementing these rights, we adopt the quality of life model, following the work of several authors who advocate for its utility as a conceptual and measurement framework. Consequently, this contribution presents the results of the initial trial conducted with the GENCAT Scale. Specifically, it provides insights into the knowledge and exercise of rights among people with intellectual disabilities who are users of day care services in Gipuzkoa, based on their quality of life scores. Furthermore, we highlight the dimensions of quality of life where our sample has achieved higher scores and identify areas for improvement. The results indicate that several proclaimed rights continue to be violated. Professionals working with this population themselves acknowledge and report violations of certain rights outlined in the Convention, such as infringements on privacy and intimacy by family members, or the fact that most users have some legally limited rights.

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